World NET Cancer Awareness Day

November 10th is World NET Cancer Awareness Day.  What is NET? Here are some facts about Neuroendocrine Tumors:

5-7 out of every 100,000 are diagnosed with #netcancer each year

50% of #netcancer patients have secondary growths at diagnosis

60-80% of patients are diagnosed with #netcancer at advanced stage showing the need for symptom awareness

Misdiagnosing is common. On average #netcancer patients see 6 healthcare professionals over 12 visits before a correct diagnosi

Symptoms of #netcancer are often similar to more common conditions: IBS, asthma, diabetes

#netcancer can arise throughout the body in organs that contain #neuroendocrine cells such as the stomach, bowel, lungs, and pancrea

Nearly all #netcancer are considered to be malignant as they grow uncontrollably and spread

More than 80% of #netcancer patients stopped working as a result of their cancer

Patients treated in a #netcancer specialist center feel more empowered and knowledgeable about their treatment and care

The incidence of #NETs is low, but #netcancer patients are everywhere. Thankfully, many live long & happy lives #netcancerday

Over 1000 events held throughout the world on November 10th to promote awareness of #netcancerday

#netcancer if you don’t suspect it you can’t detect it #netcancerday

I had never heard of NET until my husband was diagnosed with a Pancreatic NET.  I can tell you, it was one of the scariest days of my life so far.  Aaron and I were newly engaged when his doctor found the tumor on a scan looking for something else!  It was a true miracle that they found it as early as they did.  We moved our wedding for April 2018 to May 2017, a mere 3 weeks after diagnoses.  The thoughts that went through my head were horrifying.  I finally found my soul mate at 39 years old, and now there is a chance that I could lose him?  We didn’t want to wait another minute to marry each other.  We married outside on my mom’s lawn on May 21, 2017 in what was the most beautiful day, and then spent our honeymoon the following week in Johns Hopkins Hospital while Aaron had half of his pancreas, gallbladder and spleen removed.  The surgery was a complete success and my honey was cancer free and on his way to recovery.  There are still many doctors appointments to scan and test for recurrence.  His new specialist, one of the BEST in the world, did explain that recurrence was a possibility  but that we will keep very close eyes on it and catch it early if it does.  I’m sure Aaron will always live in fear of this.  I know I will.  I will do anything I can to keep my love healthy!

This Saturday, on World NET awareness day, Aaron and I are doing the Run for the Stripes at the Philadelphia Zoo.  I’ve created a team, Team Aaron (I’m so original) and can’t wait to walk for this cause.  If you’re in the area, Join Us!!!!  Help spread awareness and raise funds for research for this cancer.  2018 Run for the Stripes.

raceforNET

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